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We aspire to provide support for people impacted by rare pediatric diseases by sharing stories, providing information, and building community.

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What to Say When a Friend's Child is Diagnosed With a Disbability?

Sometimes people don’t know what to say to me.  And that’s okay.  If the  roles were reversed I think I would feel the same.  But there must be some information out there that helps you know what to say when your friend or loved one is going through a hard time because their child has [...]