|
|||||
|
Login to connect with Others on Rare Disease Support: Powered by |
There is a new clinical trial for propranalol, the drug that my son is taking for RPR. It says invitation only but if you are interested, your hospital may be able to work with one of the trial sites near you. If you want to try propranalol with your child, it’s worth asking about! The details are listed [...] It seems that this article is saying that the new drug might treat JORRP and RRP. What do you think? Click here for the full article. The new treatment is based on a form of genetic therapy called “antisense,” or AS, in which a synthesized strand of DNA or RNA targets the EGFR genes within a [...] |
||||
|
© 2010 Rare Disease Support Register http://rarediseasesupport.org/feed/ - All Rights Reserved |
|||||
