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Aspiration

We aspire to provide support for people impacted by rare pediatric diseases by sharing stories, providing information, and building community.

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Resources

This will be a growing repository for resources.  While websites don’t take the place of help from real people, they can be quite helpful in certain situations.

This repository will grow, and please send contributions.  The original categories are:

  • Book Ideas: These are books that I have read, or that are on my reading list.
  • Links: These are links to all types of resources, organized into categories listed at the top of the page.
  • Stories: People have the most amazing stories to tell.  I want to make this a place to collect the stories from individuals, allowing us to turn to the experiences of others for inspiration and connectedness.
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