I find strength in reading other people’s stories. Loving a child with a rare disease makes demands on you and provides incredible rewards and reading about the experiences of others can reduce a feeling of isolation and provide joy. Please consider sharing your experience. You might want to share a few sentences, a few paragraphs, a story or be an ongoing contributor. In our gratitude for your sharing I ask the community to be supportive and to not be critical of the things that don’t matter like grammar or writing style.
Some topics that you might want to write about include:
joy
grief
pain
rejoicing
relief
worry
decision making
balancing
siblings
parents
communication
relationships
finances
I’ve started with my story.
xo
nora
