I’ve identified the eleven topics below to be of critical importance to me, and yet I have found few sources of support outside of my immediate circle of family and friends. I hope to develop pages for each of the topics below and imagine that the list will change as I further develop my thinking.
- Relationships
- Interpersonal
- Intrapersonal
- Relationship between multiple caregivers
- Relationship between caregivers and ill child
- Relationship between caregivers and well sibling(s)
- Relationship between ill child and well sibling(s)
- Information
- Acess
- Quality
- Quantity
- Health Care
- Acess
- Quality
- Quantity
- Power
- Language
- Culture
- Ethnicity
- Socioeconomic status
- Psychological dynamics
- Uncertainty
- Guilt
- Anxiety
- Financial impact
- Insurance
- Travel
- Miscellaneous Health Care Costs
- Educational components
- Learning styles
- Access to information
- Previous experiences
- Decision Making
- Communication
- Political
- Technological
- Historical
